September 2008
My father-in-law had mentioned that there was an online support group for people or family members of people with fatty oxidation disorders (FOD). CPT II is considered a fatty oxidation disorder. In September after the doctor labeled Sarah as having CPT II, I joined the support group.
http://groups.google.com/group/FODsupport
I also joined a group specific for CPT II.
http://groups.google.com/group/CPT2?lnk=
It is a great way to discuss issues involving treatment and diet and to learn about what other parents are dealing with.
Showing posts with label fatty oxidation disorders. Show all posts
Showing posts with label fatty oxidation disorders. Show all posts
Tuesday, April 21, 2009
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