The last two days Sarah has fallen asleep during lunch. I know this happens sometimes, I remember a pic of me asleep in my spaghetti. I didn't think much about it except that maybe I need to start feeding her earlier so she is ready to nap when she has been getting tired lately. Then my wise husband pointed out that we should be aware of the possible connection between her being really sleepy at this time and CPT II. A friend of ours was eating with us and said he was wondering if there was a connection between the two also.
Is this lethargy or normal sleepy?
Ah man . . . this started the whole process of trying to be aware but not worry about it. The whole time she slept uninterrupted (we cleaned her up, put clothes on her, transported her to a birthday party where she continued to sleep) I could feel myself dreading the possible need to rush her to the hospital. She woke up happy, normal, and well rested. She proceeded to enjoy the rest of the birthday party (it turns out Sarah and the birthday girl both woke at about the same time so no festivities were missed).
We'll see tomorrow if she falls asleep during lunchtime.
My daughter, Sarah, was born in July of 2008. The Newborn Screening for our state flagged her as possibly having a genetic disorder. Her genetic metabolic doctor diagnosed her with "Presumptive" CPT II, Carnitine Palmitoyltransferase II Deficiency. This blog documents some of our experiences with this part of our life journey.
About Me
- Lisa
- I always claimed that having a child and motherhood would be my biggest test of faith. I had no idea. Then we added foster parenting to the mix. If anything, I've learned how selfish I really am.
Disclaimer
You should always consult a medical professional about the care of yourself or a loved one. I am not a medical professional. This blog is just a journal of one family's experience.
The Purpose of This Blog
This blog was set up to document my journey in the hopes that other parents may be encouraged, may feel some sort of peace in knowing that someone else is struggling with similar emotions and hardships, or that they may simply learn something from our experience.
This blog was started when Sarah was 6 months old. I began writing all my memories from her birth until the current time as best as I could remember.
After I began writing these posts, I found that the act of journeling helped me to better accept and understand my emotions and struggles. Please know that these posts are intended to document my experience. I'm writing all that I remember to help myself cope and remember what I have learned along the way.
This blog was started when Sarah was 6 months old. I began writing all my memories from her birth until the current time as best as I could remember.
After I began writing these posts, I found that the act of journeling helped me to better accept and understand my emotions and struggles. Please know that these posts are intended to document my experience. I'm writing all that I remember to help myself cope and remember what I have learned along the way.
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