September 2008
My father-in-law had mentioned that there was an online support group for people or family members of people with fatty oxidation disorders (FOD). CPT II is considered a fatty oxidation disorder. In September after the doctor labeled Sarah as having CPT II, I joined the support group.
http://groups.google.com/group/FODsupport
I also joined a group specific for CPT II.
http://groups.google.com/group/CPT2?lnk=
It is a great way to discuss issues involving treatment and diet and to learn about what other parents are dealing with.
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